Table 3. On the bright side, Tuesday was her birthday and she had a rich array of celebratory alternatives. Are you a private company interested in assisting the COVID-19 response? Twenty percent (n=327) of guardians reported worsening in their child's behavior during COVID-19 (model correctly classified 79.9% of the sample, 2 (14, N=1,637)=36.8, p=0.001). Data from May-December 2020 were merged with demographic information of patients from 10 clinics (Center for Autism and Related Disorders (CARD), Neurology, Epigenetics, Neurogenetics, Center for Development and Learning (CDL) Sickle Cell, Spinal Cord, Sturge-Weber syndrome (SWS), Tourette's, and Metabolism). COVID-19 Testing | Department of Health Coronavirus - Michigan Masi A, Mendoza Diaz A, Tully L, Azim SI, Woolfenden S, Efron D, et al. Binary logistic regression identified significant predictors of guardian response; the statistical model included sex, age, race, and clinic type as covariates. For testing inquiries or results, please contact your health care provider. Click herefor more information about inpatient hospital admissions. Neurology. How has Kennedy Krieger responded to the COVID-19 outbreak? Background: The COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. the contents by NLM or the National Institutes of Health. Sex, race and age were not predictors. Attestation to vaccination and symptom screening should be included in registration. Twenty-three percent (n=200) of guardians of White children indicated increased difficulty accessing therapies; Black and African American respondents (14%) were less likely to report difficulty accessing therapies. For patients seen in multiple clinics or multiple times, the first survey answers were analyzed. Most people cannot get free COVID-19 tests. To assess the utility of the Pandemic Intake questionnaire, a provider feedback survey was developed and sent to the seven program directors. The work is as they say: "It takes a special person". The Pandemic Intake questionnaire content was implemented beginning in April of 2020 until December 31, 2020 (Figure1), and included items specific to perceived risk of contracting COVID-19, changes in mood, behavior, sleep, appetite, and access to medical care. The Neurology clinic sees patients diagnosed with brain injury, leukodystrophies, Rett syndrome, stroke and epilepsy. Responses were analyzed in relation to sex, age, race/ethnicity and clinic. Analyzing 2,589 child neurology telehealth encounters necessitated by the COVID-19 pandemic. The Supplementary Material for this article can be found online at: https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/full#supplementary-material, 1. There was no difference in perceived increased risk of contracting COVID-19 across race, age and sex; this data contradicts previously reported information where Black and Asian individuals were at higher risk (14). The Center of Disease Control determined that patients with neurological conditions are high-risk and more susceptible to severe complications, when infected with COVID-19 (4). No formal analysis to attempt to demonstrate these differences was done. 3:934558. doi: 10.3389/fresc.2022.934558. Kennedy Krieger Institutewill begintesting consented students forCOVID-19in Mayat all four of its schoolsas part ofastudy that will helptodeterminethebeststrategiesforthe safe return to in-person learning forstudents with disabilities. We hypothesized that clinicians providing medical care during the pandemic would be assisted by this information. Patients with spinal cord injuries (10), sickle cell disease (11), developmental (12), and neurological (8) conditions are reported to be at increased risk of COVID-19 infection. "It's a multi-disciplinary clinic so it's not just one doctor seeing one kid," said Rybczynski. In addition, researchers seek to assess perspectives about COVID-19 testing, and vaccines among parents of students with disabilities who do not return to in-person learning. Race, age, and clinic type were significant predictors; sex was not. To purchase a reprint of this article, contact [emailprotected]. Center for Autism & Related Disorders (CARD), Helped to assess family stress and also patient's behaviors due to Covid-19, Increased referrals of families for training children with ASD to tolerate masks. This study reports worsened sleep in patients at CARD; previous research found patients with ADHD and ASD to report high rates of delays in bedtime, decreased sleep duration and increased sleep disorders (18). / CBS Baltimore. Franciosi EB, Tan AJ, Kassamali B, Leonard N, Zhou G, Krueger S, et al. Measures implemented by program directors to address COVID-19 concerns brought up in the pandemic intake questionnaire. Black and African American patients (8%) were 1.9 times more likely to report worsened appetite than White respondents (4%). The CARD program director reported making more referrals to the crisis center and care coordination to increase resources and address these behavioral changes (17). Sze S, Pan D, Nevill CR, Gray LJ, Martin CA, Nazareth J, et al. (2021) 57(5):6316. 3323412600. The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation. doi: 10.1093/ptj/pzaa151, 16. Responses on the Pandemic intake questionnaire were dichotomized; for example Do you consider the patient to be at increased risk for COVID-19 related complications?, yes and unsure responses were coded as an affirmative response and no was coded as a negative response. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. As a library, NLM provides access to scientific literature. Kennedy Krieger Institute offers COVID-19 testing at its schools This quality improvement project successfully implemented a pre-visit questionnaire to quickly assess areas of impact of COVID-19 on patients with neurodevelopmental disorders. Unbelievably, although he cautioned against panic-buying, he also suggested it was a good time to stock up before the order kicked in at 5 p.m. Tuesday. Twenty percent of guardians of CDL patients reported a worsening of behavior, while guardians of CARD patients (33%) were 2.05 times more likely to report worsening behavior, and respondents from the Spinal Cord clinic (3%) were 0.12 times less likely to report worsening behavior. (2021) 11(3):e045343. Fifteen percent seen in the Center for Development and Learning reported an increased perceived risk for their children (i.e., yes or unsure); those from more medically complicated programs, i.e., Spine (59%), Other (58%), Sturge-Weber Syndrome (49%), Neurology (44%), and Neurogenetics (35%) clinics were 3.298.77 times more likely to report a perceived increased risk of contracting COVID-19 (Table2). Patients with neurodevelopmental disorders are less able to tolerate mask wearing or observe social distancing requirements, exacerbating the risk of becoming infected with COVID-19 and the stress upon them and their families. COVID-19 vaccinations; Find out about other NHS services on NHS.UK. The contact numbers are as follows: Eastern Cape: 043 707 6300 or 043 707 6335. I interviewed at Kennedy Krieger Institute (Baltimore, MD) Interview. October 12, 2021 / 11:03 PM Careers, Unable to load your collection due to an error. Data from May-December 2020 were merged with demographic information of patients from 10 clinics (Center for Autism and Related Disorders (CARD), Neurology, Epigenetics, Neurogenetics, Center for Development and Learning (CDL) Sickle Cell, Spinal Cord, Sturge-Weber syndrome (SWS), Tourette's, and Metabolism). 2 Departments of Physical Medicine and Rehabilitation, The Johns Hopkins University School of Medicine and the Kennedy Krieger Institute, Baltimore, MD, United States. This website uses cookies to improve your experience while you navigate through the website. We successfully implemented a pre-visit Pandemic Intake questionnaire to quickly and systematically inform provider awareness of COVID-19 related patient concerns; the majority of program directors reported that this information helped them provide optimal care. Responses to the provider feedback survey (see Supplementary Appendix B for survey) were organized in an Excel database. Kennedy Krieger Clinic Treats Young Patients With 'Long COVID' Who Are *Correspondence: Anne M. Comi comi@kennedykrieger.org, These authors have contributed equally to this work and share senior authorship, Specialty Section: This article was submitted to Disability, Rehabilitation, and Inclusion, a section of the journal Frontiers in Rehabilitation Sciences, Women in Science: Disability, Rehabilitation, and Inclusion, View all Providers also worked to make more in-person (50%) and virtual therapies available (50%), and provided clinical equipment for patients without access (50%) (Figure2). Six of 7 program directors responded to a survey assessing their experience utilizing the Pandemic Intake survey (Table4). Clinicians initiated the use of a questionnaire to ask guardians about COVID-19 related concerns prior to clinical visits. Reports for difficulty in accessing surgeries decreased over time. Herman C, Mayer K, Sarwal A. Scoping review of prevalence of neurologic comorbidities in patients hospitalized for COVID-19. National coronavirus helpline. Moynihan R, Sanders S, Michaleff ZA, Scott AM, Clark J, To EJ, et al. doi: 10.1136/bmjopen-2020-045343, 3. Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). A full factorial binary logistic regression (with interaction) determined whether responses differed between group (more vs. less medically complicated) and time of survey completion (early vs. later pandemic), and identified which factors drove statistical significant associations. 2021 CBS Broadcasting Inc. All Rights Reserved. For the past three years, we have adjusted COVID-19 protocols, policies and guidance at Johns Hopkins Medicine (JHM) to protect the health and safety of our patients, colleagues and community members, especially those most at risk for severe infection. Necessary cookies are absolutely essential for the website to function properly. Call us on 13 77 88. Fully vaccinated is two shots of Pfizer or Moderna or one shot of the Johnson & Johnson COVID-19 vaccine. Telemedicine is a safe and satisfactory alternative to in-person appointments and encourages patients to discuss their concerns relating to COVID-19 risk (13). Twenty percent (n=327) of guardians reported worsening in their child's behavior during COVID-19 (model correctly classified 79.9% of the sample, 2 (14, N=1,637)=36.8, p=0.001). Calvo E, Corbacho-Alonso N, Sastre-Oliva T, Nunez E, Baena-Galan P, Hernandez-Fernandez G, et al. Funding comes fromtheNIH, which has awardedup to $33 million over two yearsforprojects at 10 institutions across eight statesas part ofitsSafe Return to School Diagnostic Testing Initiativeand through itsRapid Acceleration of Diagnostics Underserved Populations(RADx-UP)program. Crisis Prevention - New York State Office of Mental Health Police (2021) 5(13):271724. 8600 Rockville Pike Those from more medically complicated clinics were more likely to report inability to obtain therapies (32% vs. 18%; p<0.001) and inability to obtain surgeries (9% vs. 3%; p<0.001). There was a 0.998 cumulative decrease in reports of worsening behavior with each increase in age by month (Table2). The 33 item Pandemic Intake questionnaire collected information regarding the impact that COVID-19 had on their health, medication, and treatment (see Supplementary Appendix A for COVID-19 questionnaire). If you already have an appointment, theres no need to cancel. and transmitted securely. The complex, inter-related factors, unique to patients with neurodevelopmental disorders influence the impact of the COVID-19 pandemic. The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. The complex, inter-related factors, unique to patients with neurodevelopmental disorders influence the impact of the COVID-19 pandemic. The Port Authority airports - Newark Liberty, LaGuardia, John F. Kennedy International, New York Stewart International and Teterboro were among the first and is the largest airport system to earn Health and Safety Accreditations from the world's leading airport trade organization, Airports Council International in November.. And we are thrilled to share, all five of the Port Authority . The clinics noted as medically more complicated include: Neurogenetics, Neurology, Spinal Cord Injury, Sturge-Weber syndrome, Epigenetics, Metabolism and the Sickle Cell clinic. How Robert F. Kennedy Jr. Spreads Anti-vaxxer - Vanity Fair But many don't about it, and that's why Kennedy Krieger is now trying to get the word out about it in schools. The scale had low internal item inter-correlation, i.e., less than 0.70 (Cronbach's alpha =0.491), suggesting that the questionnaire items were sampling from a variety of clinical areas rather than assessing a single, unitary clinical domain (8, 9). Patients with spinal cord injuries (10), sickle cell disease (11), developmental (12), and neurological (8) conditions are reported to be at increased risk of COVID-19 infection. Treats nurses unfairly . The CARD program director reported making more referrals to the crisis center and care coordination to increase resources and address these behavioral changes (17). Phys Ther. If you have COVID-19 you should try to stay at home. Kennedy Center COVID Safety Plan Contact Us. In addition to Myers, twootherKennedy Kriegerstaff members are administering this study:Maureen van Stone,director, Maryland Center for Developmental Disabilities and Director of Project HEAL; and Dr. Luther Kalb,director of the Informatics Program at the Center for Autism and Related Disorders. (2020) 11:561882. doi: 10.3389/fpsyt.2020.561882, 18. Clinicians viewed the completed questionnaire before or during the visit and addressed COVID-related concerns during the appointment. COVID-19 business information | Business Victoria Chi-square analysis determined if responses differed between those in more or less medically complicated clinics. Share by Twitter. It is draining, but one of the most rewarding jobs. Over 4,000 patients (Figure1) were seen across these programs, during the time of data collection (May 2020 through December 2020). doi: 10.1182/bloodadvances.2021004288. Aggression, hypersensitivity and behavioral problems are issues in patients with autism spectrum disorder. 2022 Vedmurthy, Murray, Chen, Asiedu, Baranano, Bay, Belcher, Burton, Conlon, Fine, Gill, Harris, Hart, Inches, Johnson, Lance, Lipkin, Menon, McIntyre, Rajaprakash, Recio, Singer, Smegal, Smith-Hicks, Vernon, Wilms Floet, Wong, Yelin, Leppert, Zabel and Comi. Questions asked guardians to identify a worsening, improvement, or no change in quality of life due to the COVID-19 pandemic. There,researchersalready haveadministeredmore than 4,000rapid COVID-19 teststo students, teachers,and administrators in the six special education schools operated by the Special School District of St. Louis County. May 5, 2021. Chen PM, Hemmen TM. Working at Kennedy Krieger Institute in Baltimore, MD - Indeed Clinic type was a significant predictor; guardians of CARD patients (22%) were 2.2 times more likely to report worsening sleep compared to CDL patients (12%). This poses an issue for patients struggling to access telehealth services (6), specifically patients from underserved populations (7). All authors contributed to the article and approved the submitted version. Guardian responses from CARD had increased reports of worsening behavior (p=0.01). Call the Coronavirus Hotline on 1800 675 398 if you need help to report a rapid antigen test (RAT) or if you have any questions about COVID-19. (2020) 277:5564. Sections. A full factorial binary logistic regression (with interaction) determined whether responses differed between group (more vs. less medically complicated) and time of survey completion (early vs. later pandemic), and identified which factors drove statistical significant associations. Increase in referrals to Care Coordination for resources, With Covid I have seen an increase in significant behaviors and also referrals to ED/ Crisis center for patients. Telehealth/virtual visits are being offered by telephone or video. SHARE. Race and age were significant predictors; sex and clinic type were not. (2021) 51(5):177280.
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